I GRANDI AMBITI NELLA RIABILITAZIONE E TERAPIA DEL DOLORE Marco Paoloni PAIN An unpleasant sensory and emotional experience associated with actual or potential tissue damage, or described in terms of such damage In a patient in rehabilitation, pain can be present in two different and often overlapping variants: a functional disability primarily caused by pain or a disabling condition triggering a painful state that further aggravates the functional disability Pain rehabilitation TEAM MULTIDISCIPLINARE • • • • • • • • • • Fisiatra Algologo Medici specialisti d’organo Fisioterapista Terapista occupazionale Tecnico ortopedico Psicologo Assistente sociale Paziente Familiari Progetto e programmi riabilitativi individuali Da Basaglia N. Progettare la Riabilitazione –edi-ermes 2002 Simplified graphical representation of the Bone and Joint Decade 2000–2010 Task Force on Neck Pain and its Associated Disorders Conceptual Model for the onset, course, and care of neck pain Guzman et al., Spine 2008 Factors Affecting the Onset and Course of Neck Pain “Factor” Any attribute of the person or his/her environment that can affect the onset, course, or care of neck pain and its consequences. Independently of its origin, a factor should be classified as either modifiable or not modifiable This is important for identifying interventions that are likely to have an impact on the onset, course, and care of neck pain. Guzman et al., Spine 2008 The “Care” Complex The particulars of assessment, diagnosis, and management will vary according to the setting, the chosen (or available) health care provider, and personal preferences. Different health care disciplines have different standards for assessing, diagnosing and managing neck pain Guzman et al., Spine 2008 The “Participation” Complex A person experiencing an episode of interfering neck pain would need to consider whether to modify his/her participation (defined in the ICF model as involvement in life situations, such as paid employment, leisure, or household responsibilities). Guzman et al., Spine 2008 The “Claim” Complex Guzman et al., Spine 2008 The Impacts and Outcomes of Neck Pain Guzman et al., Spine 2008 The Impacts and Outcomes of Neck Pain Guzman et al., Spine 2008 Ambiente sociale Comportamenti associati a malattia Distress psicologico Attitudini e pregiudizi DOLORE Over the past 25 or so years (since we first became “enlightened”), incidence and prevalence rates have remained relatively constant, while costs, particularly in terms of lost productivity, are outrageous and rising • the largest mean cost (17%) for low back pain is for physiotherapy • the mean proportion of patients under the care of a medical physician for low back pain was 20% compared with 30% for nonphysicians (physiotherapy, chiropractic and osteopathy, mental health). Evidence such as this indicates that, if the intent to reduce costs is serious, evidence-based professional education must involve not just orthodox clinicians but also alternative providers, specifically dispensers of hands-on therapy. Is It Time to Rethink the Typical Course of Low Back Pain? • Setting: Thirty clinical practices (primary care, physical therapy, chiropractic, and surgical spine) in North America and Europe. • Patients: A convenience sample of 589 respondents with LBP. There were no exclusions based on type of LBP, history of onset, or comorbidities Donelson R, et al. PM R 2012;4:394–401 Research Question 1: How Commonly Do Patients With LBP Experience Recurrences? • 73% of the respondents reported a previous episode. – Age category 18-33 years: 57% – Age category 34-42 years: 82% – Age category 43-52 years: 83% – Age category 53 + years: 77% • 34.9% reported that their first episode lasted >3 months • 54% reported 10 or + episodes in their lifetime • 19.4% reported > 50 episodes in their lifetime • There were no statistically significant differences among primary care, chiropractic, and surgical spine practices, but those from physical therapy clinics had significantly higher frequencies (P.05). Donelson R, et al. PM R 2012;4:394–401 Research Question 2: Do Patients Seeking care for LBP Perceive Their Recurrent Episodes as Worsening? – – – – – pain intensity interference with leisure activities interference with work activities duration of episodes extent of most distal pain Donelson R, et al. PM R 2012;4:394–401 Research Question 3: Does the Location of Pain Change in a Discernible Pattern During Onset and Recovery? • 75.6% reported that their pain location changed during a single episode. • Of those individuals, 63.2% (or 48.3% overall) reported a very specific proximal-to-distal-to-proximal pattern of change in pain location Donelson R, et al. PM R 2012;4:394–401 Ambiente sociale Comportamenti associati a malattia Distress psicologico Attitudini e pregiudizi DOLORE Pain: ‘‘whatever the experiencing person says it is, existing whenever he says it does’’ Margo McCaffery (1968) Patients with chronic pain syndrome demonstrate some typical characteristics • Dramatization of complaints • Drug misuse or overuse • Dysfunction • Dependency • Depression • Disability In various studies during the last decade, woman with chronic muscular pain such as fibromyalgia, and chronic fatigue syndrome have reported negative experiences during medical encounters. They repeatedly find themselves being questioned and judged either to be not ill, suffering from an imaginary illness or given a psychiatric label “It is difficult to accept that I can’t do everything that I want to do, and to abandon hope of being the kind of person who never gives up, which I’ve always considered myself to be. I’ve always been so strong and robust, but I feel very much alone with these things; like a neurotic, whining woman. In the end you wonder whether the others are right and that it’s you that there is something wrong with. But my back will never be cured by going to a psychologist.” ‘Reality is not something out in the universe to be discovered, but rather is contingent upon people who construct it,’ Impact of Disbelief in Chronic Pain Summary of Recommendations for Health Care Professionals • Using psychologic explanations of pain can be experienced as a denial of the individual’s pain. • Be aware of the tension that patients can experience in the expression of their pain. • To address not only the patient’s experience of isolation but also the anger and frustration that can stem from not being taken seriously. • Empowering the patient with health care options could be an essential step toward countering experiences of helplessness, particularly given the lack of control many patients experience in the persistence of their pain “Sono nato con la spondilolistesi, cioè con una vertebra lombare ribelle che si è staccata dalle altre e sporge. Quell’unica vertebra spostata riduce lo spazio all’interno della colonna e il minimo movimento fa sì che i nervi si sentano costretti. Se a ciò si aggiungono due ernie e un osso che non vuole smettere di crescere nel vano sforzo di proteggere l’area danneggiata, quei nervi finiscono per soffrire di claustrofobia. E quando protestano per l’angustia del loro alloggio, quando segnalano la loro sofferenza, su e giù per la gamba mi saetta un dolore che mi fa boccheggiare e parlare in turco. In quei momenti l’unico sollievo è sdraiarmi e aspettare. …. Sto negoziando con lui (il mio corpo) chiedendogli di rientrare in attività per qualche ora ogni tanto. Gran parte delle trattative riguarda un’iniezione di cortisone che attenua temporaneamente i dolori. Prima che faccia effetto, però, anche l’iniezione provoca i suoi tormenti… Il medico ha spiegato che doveva far penetrare l’ago, lungo diciotto centimetri, più vicino possibile ai nervi infiammati. Ma non poteva arrivarci direttamente, perché le ernie e l’osso sporgente gli ostruivano il percorso. I suoi tentativi di aggirarli mi hanno fatto vedere le stelle. Prima ha inserito l’ago, poi ha posizionato una grossa macchina per le radiografie sopra la mia schiena per vedere quanto fosse vicino al nervo. … Gira e rigira, alza e abbassa, ha manovrato l’ago fino a farmi venire le lacrime agli occhi. Alla fine ha trovato il punto. Centro, ha detto. Ecco il cortisone. Mi sono morso il labbro per il bruciore. Poi è arrivata la pressione. Mi sono sentito pervaso, imbalsamato. … Ben presto il dolore mi è sembrato meraviglioso, quasi dolce, perché riconoscevo quel tipo di sofferenza che precede il sollievo. Ma a ben pensare, forse, il dolore è sempre così”