Department of Medical and Surgical Neonatology:
Department of Medical and Surgical Neonatology:
Department of Medical and Surgical Neonatology:
Inquadrare, decidere, comunicare…
Department of Medical and Surgical Neonatology:
Department of Medical and Surgical Neonatology:
(sapendo cosa si vuole comunicare e forti
delle proprie convinzioni tecniche ed etiche)
Department of Medical and Surgical Neonatology:
Department of Medical and Surgical Neonatology:
Department of Medical and Surgical Neonatology:
Giambattista A:
Department of Medical and Surgical Neonatology:
Inquadramento iniziale:
Department of Medical and Surgical Neonatology:
17 Giugno 2015:
f
c
d
Tipo III
Legenda: c:colecisti; d:duodeno; f:fegato
Department of Medical and Surgical Neonatology:
Inquadramento intermedio: Kasai 1:
Department of Medical and Surgical Neonatology:
Dop un mese: 11/7/15
•
•
•
Tracheostomia
Correzione Fallot (5-6 kg, almeno 4 mesi)
TxL dopo Fallot (almeno 8/9 mesi)
Department of Medical and Surgical Neonatology:
Discussione nel Team Cromosomopatia
Department of Medical and Surgical Neonatology:
Discussione nel Team Cromosomopatia
Department of Medical and Surgical Neonatology:
Discussione nel Team Cromosomopatia
Department of Medical and Surgical Neonatology:
Discussione nel Team Cromosomopatia
Department of Medical and Surgical Neonatology:
Discussione nel Team Cromosomopatia
Department of Medical and Surgical Neonatology:
Discussione nel Team: Neurologia
Department of Medical and Surgical Neonatology:
Discussione nel Team: AVB
Department of Medical and Surgical Neonatology:
Biliary Atresia and PATIENTS SURVIVAL
LIVER TRANSPLANTATION 21:922–927, 2015
Department of Medical and Surgical Neonatology:
Biliary Atresia and GRAFT SURVIVAL
LIVER TRANSPLANTATION 21:922–927, 2015
Department of Medical and Surgical Neonatology:
Biliary atresia with associated structural malformations in
Canadian infants
Orlee R. Guttman1,2, Eve A. Roberts3,4,5, Richard A. Schreiber1,2, Collin C. Barker1,2,
Vicky L. Ng3,5 and the Canadian Pediatric Hepatology Research Group
Liver International (2011)
Department of Medical and Surgical Neonatology:
Biliary atresia
Jane L Hartley, Mark Davenport, Deirdre A Kelly
Lancet 2009; 374: 1704–13
In children with the syndromic variants of
biliary atresia, associated anomalies,
especially congenital cardiac
malformations, increase the risk of both
early mortality and morbidity. In such
children the need for liver transplantation is
great. When transplantation is considered in
these patients vascular imaging of anatomical
anomalies should be thorough, because
technical modifications are needed during
surgery. Nevertheless, results that are similiar
to those in children with isolated biliary
atresia can be achieved.
Department of Medical and Surgical Neonatology:
La situazione attuale di G.
Department of Medical and Surgical Neonatology:
La situazione attuale di G.
Department of Medical and Surgical Neonatology:
Discussione nel Team
Department of Medical and Surgical Neonatology:
I genitori?
Department of Medical and Surgical Neonatology:
(The example of prenatal counselling)
“Improvvisamente il mondo mi è
crollato” addosso
“Nulla è più come prima”
Intense emotional crisis of parents who
have given birth to a child with a
congenital malformation.
“Mi sono trovato in un modo che non
mi appartiene”
Aite L, Bagolan P. Early Human Development, 2006
[email protected]
(The example of prenatal counselling)
“Semplicemente non posso credere che stia
accadendo a me”
“Mi ripeto che non sta succedendo a me”
“Mi dico che è solo un incubo”
Attempt to escape information
and take distance from this
unbearable event.
Aite L, Bagolan P. Early Human Development 2006
[email protected]
(The example of prenatal counselling)
(Sadness for what is lost)
“Perchè a me?”
Intense feelings of sadness, anger and
anxiety following the communication of
diagnosis
“Cosa o fatto per meritare
questo?”
Aite L, Bagolan P. Early Human Development, 2006
[email protected]
(The example of prenatal counselling)
“Oscillo tra la speranza e il
terrore…”
Gradual lessening of the intense emotional
reactions experience.
Aite L, Bagolan P. Early Human Development, 2006
[email protected]
I Genitori…
Department of Medical and Surgical Neonatology:
Atteggiamento nel Team:
Department of Medical and Surgical Neonatology:
Quesiti nel Team:
Department of Medical and Surgical Neonatology:
Io …
Department of Medical and Surgical Neonatology:
Io …
Department of Medical and Surgical Neonatology:
Io …
Department of Medical and Surgical Neonatology:
Department of Medical and Surgical Neonatology: