INSPIRE 1
Società Italiana di Psico-Oncologia
Affrontare il Tumore del Polmone:
Supporto ed Aiuto Emotivo per i Pazienti
Per la versione italiana si ringraziano:
t Fondazione AIOM
t Società Italiana di Psico-Oncologia (SIPO)
Un ringraziamento
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INDICE
Idee per Reagire Meglio
Introduzione
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Gestire la Diagnosi
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Comprendere ed Affrontare
la Terapia
Fonti informative
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INTRODUZIONE
Come può essere utile questo libretto
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Le emozioni che si possono provare
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INSPIRE 5
GESTIRE LA DIAGNOSI
Reazione di shock e preoccupazione
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6
Emozioni difficili
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Informazioni sul tumore del polmone
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INSPIRE 7
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Tipi di tumore ai polmoni
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Chi può avere il tumore al polmone?
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8
Pensare oltre
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INSPIRE 9
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Pensare alle relazioni interpersonali
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10
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INSPIRE 11
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12
COMPRENDERE E AFFRONTARE LA TERAPIA
Trattamento
Informazioni sulle terapie
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Chirurgia
Radioterapia
Chemioterapia
FarmDFLELRlogiFi
o “target therapy”
INSPIRE 13
Come funziona
Quando dovrebbe essere utilizzato
Operazione per rimuovere una parte
o l’intero tumore
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salute
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polmonare
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del tumore o distruggHUQHOHFHOOXle.
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non tumorali
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nessun tipo di operazione
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sintomi (es. dolore, espettorato
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il tumore
‡0HQWUHVLHIIHWWXDODUDGLRWHUDSLDper
ridurre il tumore (a volte prima della
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‡'RSRO·LQWHUYHQWRFKLUXrgLFRR la
radioterapia per distruggere le
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Una nuova classe di farmaci che ha
l’obiettivo di individuare e uccidere
solo le cellule tumorali senza
danneggiare quelle sane.
La maggior parte degli effetti
collaterali sono controllabili
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14
Parlare con l’équipe curante
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INSPIRE 15
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Perché non:
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16
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Domande da porre
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INSPIRE 17
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18
Misurare la “temperatura emotiva”
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10 = massimo
disagio emotivo
Sì
No Problemi Pratici
Cura dei figli
Alloggio
Economici
Trasporto
Scolastici/lavorativi
Sì
No Problemi relazionali
Rapporto con i figli
Rapporto con il partner
Rapporto con gli altri
Sì
No Problemi Emozionali
Depressione
Paure
Nervosismo
Tristezza
Preoccupazione
Perdita di interesse
nelle usuali attività
No Aspetti spirituali
Sì
0 = nessun
disagio emotivo
INSPIRE 19
Sì
No Problemi Fisici
Problemi di sonno
"MUSPTQFDJmDBSF
Dolore
Problemi a lavarsi/vestirsi
Nausea
Senso di fatica e stanchezza
Problemi a muoversi
Problemi respiratori
Ulcere alla bocca
Problemi ad alimentarsi
Difficoltà a digerire
Stipsi
Disturbi della minzione
Febbre
Secchezza della cute/prurito
Naso chiuso/senso di secchezza
Formicolio alle mani o ai piedi
Senso di gonfiore
Problemi sessuali
Diarrea
Problemi di memoria/
concentrazione
Problemi su come ci si vede
e come si appare
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20
Emozioni e trattamento
µOPSNBMFQSPWBSFFNP[JPOJDPOUSBTUBOUJSJHVBSEPBMMFUFSBQJF
OFDFTTBSJFQFSDPNCBUUFSFJMUVNPSF1PUSFCCFTFOUJSTJTQBWFOUBUP
QFSHMJFGGFUUJDPMMBUFSBMJPBSSBCCJBUPQFSJUSBUUBNFOUJEBTFHVJSF
1VÛFTTFSFJOPMUSFEJGmDJMFOPOTBQFSFDIFDPTBBDDBESËOFM
GVUVSP
Può essere utile:
t1BSMBSFDPOJMQFSTPOBMFTBOJUBSJPEFMSFQBSUPEJ0ODPMPHJBMB
GBNJHMJBPVOBmHVSBEJTVQQPSUPTQFDJBMJ[[BUBOFMMBJVUBSFJ
QB[JFOUJFMFMPSPGBNJHMJFBEBGGSPOUBSFQBVSFEFQSFTTJPOF
BOTJBPBMUSFQSFPDDVQB[JPOJEBUFEBMMBNBMBUUJB
t1BSMBSFBMMFQFSTPOFEFJHSVQQJEJTVQQPSUP
t4DSJWFSFVOEJBSJPOFMRVBMFFTQSJNFSFDJÛDIFTJQSPWB
t5FOFSFBNFOUFHMJPCJFUUJWJEFMUSBUUBNFOUP
4 6 ( ( & 3 * . & / 5 0 7 & - 0 $ & EJTUSBSTJQVÛFTTFSFVOPUUJNBUFDOJDBQFSBGGSPOUBSFMBTJUVB[JPOF
1SPWJBDFSDBSFRVBMDPTBQFSEJTUSBSSFMBNFOUFEBJQSPCMFNJEJ
TBMVUFBODIFTFTPMPQFSVOJTUBOUF
INSPIRE 21
5BMWPMUBMBDIFNJPUFSBQJBBMUSJGBSNBDJPMBNBMBUUJBTUFTTB
QPTTPOPDBVTBSFDPOGVTJPOFPQSPCMFNJFNPUJWJ4JSJWPMHBBMTVP
NFEJDPQFSDPOGSPOUBSTJTVPHOJFNP[JPOFPQSPCMFNB
Gestire i sintomi
Dolore. µOPSNBMFBWFSQBVSBEJQSPWBSFEPMPSFBDBVTBEFMMB
NBMBUUJBNBTFJMEPMPSFEJWFOUBVOQSPCMFNBOFQBSMJDPOJM
NFEJDPPMJOGFSNJFSFQPJDIÏQVÛFTTFSFUFOVUPTPUUPDPOUSPMMP
µNFHMJPUFOFSFTPUUPDPOUSPMMPJMEPMPSFQSJNBDIFBVNFOUJ*M
NFEJDPEFWFBODIFTBQFSFEJDIFUJQPEJEPMPSFTJUSBUUBQFSDIÏ
QPUSFCCFTJHOJmDBSFDIFJMUSBUUBNFOUPEFCCBFTTFSFBHHJVTUBUP
/POTPGGSBJOTJMFO[JPJMEPMPSFQVÛFTTFSFDPOUSPMMBUP
4 6 ( ( & 3 * . & / 5 0 % * " * 6 5 0 " * 6 5 0 ÒJNQPSUBOUFSJQPSUBSFBMNFEJDPTFJMUSBUUBNFOUPPJGBSNBDJQSPWPDBOP
EPMPSF
1VÛFTTFSFOFDFTTBSJPGBSFEFHMJBHHJVTUBNFOUJBUUFOUJQFSTUBCJMJSFJM
EPTBHHJPBQQSPQSJBUP
22
Problemi respiratori
-BEJGmDPMUËBSFTQJSBSFQVÛFTTFSFVOTJOUPNPEFMUVNPSFBM
QPMNPOFDIFQVÛTQBWFOUBSFNPMUPFDSFBSFEJTBHJP%JOVPWP
DIJFEBBJVUPBMNFEJDPPBMMJOGFSNJFSF1PTTPOPBODIFFTTFSFEJ
BJVUPBMDVOJFTFSDJ[JEJSFTQJSB[JPOF
Effetti collaterali del trattamento
(MJFGGFUUJDPMMBUFSBMJEFJUSBUUBNFOUJQPTTPOPFTTFSFDBVTBEJ
UJNPSFBODIFTFDJBTDVOPSFBHJTDFJONPEPEJWFSTP1FSFTFNQJP
MBDIFNJPUFSBQJBQSPWPDBVOTFOTPEJOBVTFBBEBMDVOFQFSTPOF
*MNFEJDPQVÛQSFTDSJWFSFGBSNBDJVUJMJQFSDPOUSBTUBSFHMJFGGFUUJ
DPMMBUFSBMJ
4 6 ( ( & 3 * . & / 5 * 1 & 3 " ' ' 3 0 / 5 " 3 & * 4 * / 5 0 . * FWJUBSFPEPSJGPSUJFTQF[JFQFSSJEVSSFHMJFGGFUUJEFMMBOBVTFB
.BOHJBSFFCFSFMFOUBNFOUFOPONFTDPMBSFDJCJDBMEJFGSFEEJFWJUBSF
DJCJGSJUUJFHSBTTJFMBDBGGFJOB.BOHJBSFQJDDPMFRVBOUJUËEJDJCP
EVSBOUFUVUUPHJPSOPQJVUUPTUPDIFBJUSFQBTUJQSJODJQBMJ
INSPIRE 23
IDEE PER REAGIRE MEGLIO
Preoccupazioni comuni
µOBUVSBMFFTTFSFQSFPDDVQBUJPUVSCBUJEBRVFMMPDIFTUB
TVDDFEFOEPEVSBOUFJMUSBUUBNFOUP"MDVOFEPNBOEFDIFQPUSFCCF
WFOJSFTQPOUBOFPQPSTJTPOP
t 4UPGBDFOEPMBDVSBNJHMJPSF
t -BDVSBTUBGVO[JPOBOEP
t 4BSËEPMPSPTB
t .JGBSËTFOUJSFNBMF
t *NJFJDBQFMMJDBESBOOP
6OBMUSPJOUFSSPHBUJWPQPUSFCCFFTTFSFEPNBOEBSTJDPTB
TVDDFEFSFCCFTFOPOGBDFTTFOFTTVOUJQPEJUSBUUBNFOUP
4 6 ( ( & 3 * . & / 5 0 7 & - 0 $ & BOOPUJMFTVFQBVSFFMFEPNBOEFFQPJOFQBSMJDPOJMNFEJDP
Prendersi cura di se stessi
$JTBSBOOPNPNFOUJJODVJTJTFOUJSËHJáFNPMUPTUBODP
µJNQPSUBOUFFTTFSFQBSUJDPMBSNFOUFHFOUJMJDPOTFTUFTTJ
QSFOEFOEPTJDVSBEJTÏEVSBOUFFEPQPMBUFSBQJB
24
4 6 ( ( & 3 * . & / 5 0 1 & 3 * - # & / & 4 4 & 3 & BODIFTFTBSËEJGmDJMFQSPWJBHJPJSFEJPHOJTJOHPMPNPNFOUP
4JDPODFEBEFMMFQBVTFHVBSEJVOmMNWBEBBMCBSJODPOUSJBNJDJ
-JNQPSUBO[BEJVOPTUJMFEJWJUBTBOP
t.BOHJBSFTBOPJOTFSFOEPOFMMBEJFUBNPMUB
WFSEVSBFGSVUUBGSFTDBDBSCPJESBUJF
QSPUFJOFBMDVOJFTFNQJTPOPDBSOFQFTDF
GSVUUBTFDDBFMBUUJDJOJ
t#FSFNPMUJMJRVJEJ
t3JQPTBSFFEPSNJSFBTVGmDJFO[B
t'BSFVOQPEJFTFSDJ[JPmTJDP
6OBCVPOBBMJNFOUB[JPOFÒJNQPSUBOUF
QFSNBOUFOFSTJJOGPS[F4FOPOIBNPMUP
BQQFUJUPPHMJFGGFUUJDPMMBUFSBMJEFM
USBUUBNFOUPMFSFOEPOPEJGmDJMFNBOHJBSF
CFOFVOEJFUJTUBQVÛBJVUBSMBDPOTJHMJBOEPMF
JDJCJHJVTUJ
4FGVNBFWVPMFTNFUUFSFMÏRVJQFDVSBOUF
QVÛBJVUBSMB
INSPIRE 25
Imparare a rilassarsi
&TJTUPOPUFDOJDIFQFSDBMNBSFMBNFOUFFJMDPSQPDIFQPTTPOP
BJVUBSMBBDPNCBUUFSFMBOTJBJMEPMPSFFHMJFGGFUUJDPMMBUFSBMJEFJ
USBUUBNFOUJ"MDVOJEJRVFTUJNFUPEJJODMVEPOPJMSJMBTTBNFOUP
QSPHSFTTJWPMBNFEJUB[JPOFFMBWJTVBMJ[[B[JPOFDSFBOEP
JNNBHJOJQPTJUJWFOFMMBNFOUF
*MNFEJDPMJOGFSNJFSFPJM
UFSBQJTUBQPTTPOPDPOTJHMJBSMFEFHMJFTQFSUJDVJSJWPMHFSTJ4FOPO
TJTFOUFBTVPBHJPOFMSJDIJFEFSFVOBJVUPQSPGFTTJPOBMFSJDPSEJ
DIFFTJTUPOPBODIFMJCSJPBMUSFSJTPSTFEBDPOTVMUBSF
26
1FSEBSMFVOJEFBQSPWJRVFTUPFTFSDJ[JPCBTFEJSJMBTTBNFOUPDIF
EVSBDJSDBNJOVUJ
t4JTJFEBDPNPEPJOVOQPTUPUSBORVJMMP
t$IJVEBHMJPDDIJFEFDJEBEJiMBTDJBSFBOEBSFWJBUVUUJJQFOTJFSJw
t3FTQJSJQSPGPOEBNFOUFFMFOUBNFOUF
t.FOUBMNFOUFSBHHJVOHBPHOJQBSUFEFMTVPDPSQPFSJMBTTJUVUUJ
JNVTDPMJ*OJ[JEBMMBUFTUBFQPJTDFOEBQJBOPQJBOPmOPBMMB
QVOUBEFJQJFEJ
t2VBOEPMBUFOTJPOFTFOFTBSËBOEBUBDPOUJOVJBSFTQJSBSF
MFOUBNFOUFNBOUFOFOEPHMJPDDIJDIJVTJ
6OBWPMUBDIFBWSËQSFTPDPOmEFO[BDPORVFTUPFTFSDJ[JPTBSËJO
HSBEPEJSJMBTTBSTJQJáGBDJMNFOUFFWFMPDFNFOUF
4 6 ( ( & 3 * . & / 5 0 1 & 3 3 * - " 4 4 " 3 4 * DIJVEBHMJPDDIJMBTDJBOEBSFUVUUBMBUFOTJPOFFQPJMJSJBQSB
INSPIRE 27
Modi per respirare meglio
"WFSFEJGmDPMUËBSFTQJSBSFÒDPNVOFQFSMFQFSTPOFDPOVO
UVNPSFBJQPMNPOJ
µJOPMUSFVOBTJUVB[JPOFDIFQVÛDSFBSFQBOJDP4F
IBQSPCMFNJEJSFTQJSB[JPOFMPDPNVOJDIJBMNFEJDPP
BMMJOGFSNJFSFBODIFMPTTJHFOPPJGBSNBDJQPTTPOPFTTFSF
VUJMJ$IJFEBVOJODPOUSPDPOVOUFSBQJTUBEFMMBSJBCJMJUB[JPOF
PVOmTJPUFSBQJTUBDIFMFQPUSËTVHHFSJSFQJDDPMJDBNCJBNFOUJ
OFMMBWJUBEJUVUUJJHJPSOJJONPEPDIFJQPMNPOJGBDDJBOP
NFOPGBUJDBBMBWPSBSF
Consigli utili:
t 4FEFSTJDPOMBTDIJFOBFSFUUBSFOEFQJáGBDJMFMBSFTQJSB[JPOF
t 1SPWBSFBEPSNJSFJOVOBQPTJ[JPOFSJQJFHBUBQJVUUPTUPDIFJO
VOBQPTJ[JPOFEJTUFTB
t 1SPWBSFBEVTBSFVOWFOUJMBUPSFBJVUFSËBSJDBNCJBSFMBSJB
OFMMBTUBO[B
t 4FVTBMPTTJHFOPTJBTTJDVSJEJBWFSMPWJDJOP
28
t -BOTJBQVÛGBSSFTQJSBSFNBMFVUJMJ[[JHMJFTFSDJ[JEJ
SJMBTTBNFOUP1VÛBODIFDIJFEFSFBMNFEJDPRVBMJTPOPJ
GBSNBDJDIFBJVUBOPBSJEVSSFMBOTJB
t 4FTFOUFMBCPDDBTFDDBQSPWJBTVDDIJBSFVOBDBSBNFMMBQFS
GBWPSJSFMBTBMJWB[JPOF
t 1BSMBSFSJDIJFEFNPMUPmBUPQSPWJBQBSMBSFQJáMFOUBNFOUFF
BGBSFQJáQBVTF
5VUUFRVFTUFDPTFMBJVUFSBOOPBDPOUSPMMBSFNFHMJPMFWFOUVBMF
NBODBO[BEJmBUP2VFTUPSJEVDFMFQPTTJCJMJUËEJTFOUJSTJ
BOTJPTJ
Esercizi per respirare
6OmTJPUFSBQJTUBQVÛJOTFHOBSMFVUJMJFTFSDJ[JQFSSFTQJSBSF
NFHMJP1VÛJOJ[JBSFDPORVFTUJTFNQMJDJFTFSDJ[J
t 3FTQJSJWFMPDJFQPDPQSPGPOEJTUBODBOP4JDPODFOUSJTVVO
SFTQJSPEPMDFBGSFRVFO[BOPSNBMFGBDFOEPQBSUJSFJMSFTQJSP
EBMEJBGSBNNB
t "QSJSFMFHHFSNFOUFMFMBCCSBNFOUSFTJSFTQJSBTQFTTPBJVUB
INSPIRE 29
t 4JTJFEBDPNPEBNFOUFNFUUBMFNBOJTVMMFHJOPDDIJBFE
FTQJSJQFSSJMBTTBSFMFTQBMMF
t .FUUBMFNBOJTVMMPNCFMJDPFUPTTJTDBTFOUJSËJMEJBGSBNNB
JMNVTDPMPQSJODJQBMFQFSMBSFTQJSB[JPOF
t 5FOHBMFNBOJTVMEJBGSBNNBJONPEPEBTFOUJSFTFJMSFTQJSP
ÒDPSSFUUPFQSPGPOEP
t *OTQJSJBUUSBWFSTPJMOBTPFEFTQJSJEBMMBCPDDB*NQJFHIJJM
EPQQJPEFMUFNQPBEFTQFMMFSFMBSJBSJTQFUUPBRVBOEPMB
JOTQJSB
t 'BDDJBQSBUJDBDPOSFTQJSJJORVFTUPNPEPQJáWPMUFBM
HJPSOP
4 6 ( ( & 3 * . & / 5 0 1 & 3 * - # & / & 4 4 & 3 & GBDDJBJONPEPDIFMBNCJFOUFEPNFTUJDPTJBQJBDFWPMFFTBMVUBSF
-BTDJFOUSBSFBSJBGSFTDBFTPMF-JHJFOFÒJNQPSUBOUFNBTQFTTPOPO
BWSËMFOFSHJBOFDFTTBSJBQFSGBSFUVUUJJMBWPSJEJDBTBRVJOEJDIJFEB
BRVBMDVOPEJBJVUBSMB1JDDPMJBDDPSHJNFOUJDPNFGPUPHSBmFRVBESJP
DBOEFMFQPTTPOPSFOEFSFVOBTUBO[BQJáSJMBTTBOUF
30
L’aiuto dei professionisti
.FEJDJFEJOGFSNJFSJTBOOPDIFJORVFTUFDJSDPTUBO[FWJÒCJTPHOP
EJVOTVQQPSUPFNPUJWPPMUSFDIFNFEJDP1VÛSJWPMHFSTJBMPSPTF
TJTFOUFTQBWFOUBUPPEFQSFTTP6OQSPGFTTJPOJTUBÒJOHSBEPEJ
t
t
t
t
4QJFHBSMFDPTBBDDBEFEVSBOUFMBNBMBUUJBFJMUSBUUBNFOUP
%JSMFDPTBBTQFUUBSTJEPQP
1JBOJmDBSFMFDVSFJOTJFNFBMFJ
"JVUBSMBBDPOUSPMMBSFJ
TJOUPNJ
1VÛFTTFSFVUJMFBODIF
DPJOWPMHFSFBMUSFmHVSF
TQFDJBMJ[[BUF
o BTTJTUFOUJTPDJBMJQFSBWFSFVOTVQQPSUPQFSDJÛDIFSJHVBSEBMB
GBNJHMJBMBDBTBFHMJBTQFUUJFDPOPNJDJ
o DPOTVMFOUJ
o QTJDIJBUSJPQTJDPMPHJFTQFSUJJORVFTUBBSFBDIFQPTTPOP
PGGSJSMFVOTVQQPSUPTQFDJmDPFUSBUUBNFOUJGBSNBDPMPHJDJQFS
BJVUBSFBHFTUJSFMBOTJBMBEFQSFTTJPOFMJOTPOOJBFJMTFOTPEJ
GBUJDB
INSPIRE 31
o BMUSJUFSBQJTUJDIFQPTTPOPBJVUBSFDPOSJNFEJDPNQMFNFOUBSJB
iTUBSFNFHMJPwDPNFBEFTFNQJPJMNBTTBHHJPMBHPQVOUVSBF
MBSPNBUFSBQJB
o EBSFJOGPSNB[JPOJTVMMFTUSVUUVSFBMEJGVPSJEFMMPTQFEBMFDIF
QPTTPOPGPSOJSFVOTVQQPSUPFEBJVUBSFEVSBOUFMFDVSF
/POBCCJBUJNPSFDIJFEFSFBJVUPOPOTJHOJmDBSJOVODJBSFBEVOB
QBSUFEFMMBQSPQSJBJOEJQFOEFO[B
Ricevere aiuto e supporto emotivo
µNPMUPDPNVOFQFSMFQFSTPOFDPMQJUFEBMUVNPSFBMQPMNPOF
TPGGSJSFEJEJTBHJPFNPUJWP4FTJTFOUFTPWSBDDBSJDPP
TQBWFOUBUPOPOFTJUJBQBSMBSFDPOJMNFEJDPPVOJOGFSNJFSF
TQFDJBMJ[[BUP
5BMWPMUBJMUJQPEJUVNPSFFEJUSBUUBNFOUPQPTTPOPFTTFSFMB
DBVTBPSHBOJDBEJNPMUJQSPCMFNJQTJDPMPHJDJJMNFEJDPQVÛ
BJVUBSMBBTUBSFNFHMJPNPEJmDBOEPBMDVOFUFSBQJF
*NFEJDJQPTTPOPBODIFQSFTDSJWFSFGBSNBDJQFSBJVUBSFB
SJTPMWFSFJTJOUPNJQTJDPMPHJDJ4QFTTPDJÛEJDVJTJIBEBWWFSP
CJTPHOPÒQBSMBSFDPORVBMDVOPFBWFSFVOTVQQPSUPNFOUSF
32
TJFTQSJNFDJÛDIFTJQFOTB
*MNFEJDPQVÛJOEJSJ[[BSMB
BEVOTFSWJ[JPDIFQPTTB
GPSOJSFTVQQPSUPQTJDPMPHJDP
TFSWJ[JPEJQTJDPPODPMPHJB
F
JOUFSWFOUJTQFDJmDJ
2VFTUJQPTTPOPFTTFSF
JOEJWJEVBMJEJDPQQJBP
GBNJMJBSJEJHSVQQP5SBJ
EJWFSTJBQQSPDDJVUJMJVOUJQP
EJQTJDPUFSBQJBDPNVOFÒEFmOJUPDPHOJUJWPoDPNQPSUBNFOUBMF
2VFTUPBQQSPDDJPQVÛBJVUBSFBDBQJSFJMNPEPJODVJTJQFOTBF
TVMNPEPEJTFOUJSTJ
4 6 ( ( & 3 * . & / 5 0 1 & 3 * - # & / & 4 4 & 3 & TJQSFOEBJMUFNQPOFDFTTBSJPQFSMFQJDDPMFDPTFDIFSFOEPOP
QJBDFWPMFMBWJUB1BSMJDPOHMJBNJDJTJTJFEBJOVOQBSDPHVBSEJJM
USBNPOUPJOTPNNBGBDDJBRVBMTJBTJDPTBDIFQPTTBGBSMBTPSSJEFSF
INSPIRE 33
Parlare ai bambini
.PMUFQFSTPOFTJDIJFEPOP
DPNFQBSMBSFBJCBNCJOJEFM
UVNPSFBMQPMNPOF$PTBEJSF
EJQFOEFEBMMBMPSPFUËNB
ÒJNQPSUBOUFDFSDBSFEJOPO
EJSFMPSPCVHJF4FEPWFTTFSP
TDPQSJSFDIFBWFUFNFOUJUP
RVFTUPQPUSFCCFJODSJOBSFMB
MPSPmEVDJB$PNFHMJBEVMUJJ
CBNCJOJIBOOP
CJTPHOPTPMPEFMMF
JOGPSNB[JPOJDIFQPTTPOP
HFTUJSF#JTPHOFSFCCFEBS
MPSPMPQQPSUVOJUËEJDIJFEFSF
NBDBQJSFRVBOUPWPHMJPOPEBWWFSPTBQFSF*CBNCJOJUSBHHPOP
CFOFmDJPRVBOEPMFBCJUVEJOJBDBTBFMBSPVUJOFRVPUJEJBOB
WFOHPOPNBOUFOVUFJMQJáOPSNBMNFOUFQPTTJCJMF
34
Come può aiutare un gruppo di pazienti
6OHSVQQPEJTVQQPSUPQVÛNFUUFSMBJODPOUBUUPDPOBMUSFQFSTPOF
DIFIBOOPWJTTVUPPDIFTUBOOPBODPSBWJWFOEPMBTVBTUFTTB
FTQFSJFO[BFEBSMFJOGPSNB[JPOJFDPOTJHMJQSBUJDJ"MDVOJHSVQQJ
QPTTPOPBJVUBSMBTFIBQSPCMFNJDPOMFUFSBQJFPCJTPHOPEJ
TVQQPSUP5BMWPMUBBODIFTPMPQBSMBOEPDPORVBMDVOPDIFÒOFMMB
TUFTTBTJUVB[JPOFTJQVÛTUBSFNFHMJP$IJFEBBMQFSTPOBMFNFEJDP
DPNFDPOUBUUBSFHSVQQJEJRVFTUPHFOFSFOFMMBTVB[POB
INSPIRE 35
Note
36
CONTATTI FONDAMENTALI
Società Italiana di Psico-Oncologia (SIPO)
-B 4PDJFUË *UBMJBOB EJ 1TJDP0ODPMPHJB
4*10
SBQQSFTFOUB JO *UBMJB MBTTPDJB
[JPOF JOUFHSBOUF MF mHVSF QSPGFTTJPOBMJ
QTJDPMPHJPODPMPHJQTJDIJBUSJFBMUSJPQF
SBUPSJ TBOJUBSJ
DIF MBWPSBOP OFMMBNCJUP
EFMMPODPMPHJBFEFMMBTTJTUFO[BBMMFQFSTP
OFNBMBUFEJDBODSPFBMMFMPSPGBNJHMJF
JO RVBMVORVF GBTF EFMMB NBMBUUJB F EFMMB
TPQSBWWJWFO[B -B 4*10 TJ QPOF MPCJFU
UJWP QSJODJQBMF EJ QSPNVPWFSF MB DPOP
TDFO[B JM QSPHSFTTP F MB EJGGVTJPOF EFMMB
EJTDJQMJOB QTJDPODPMPHJDB JO DBNQP DMJOJ
DP GPSNBUJWP TPDJBMF F EJ SJDFSDB TUBCJ
MFOEP SFMB[JPOJ TDJFOUJmDIF F SBQQPSUJ EJ
DPMMBCPSB[JPOFDPOBMUSFTPDJFUËTDJFOUJm
DIFFDPOFOUJOB[JPOBMJFEJOUFSOB[JPOBMJ
PQFSBOUJ JO RVFTUP TFUUPSF DPOUSJCVFOEP
BMMB GPSNB[JPOF UFDOJDPQSPGFTTJPOBMF F
NBOBHFSJBMF EFHMJ PQFSBUPSJ TBOJUBSJ BM
mOF EJ DSFBSF mHVSF QSPGFTTJPOBMJ RVBMJ
mDBUF -B 4*10 IB QBSUFDJQBUP BMMB WF
SJmDBEFMMBEBUUBNFOUPJUBMJBOPEJRVFTUP
PQVTDPMP 1FS VMUFSJPSJ JOGPSNB[JPOJ TVJ
QSPHSBNNJ FEVDB[JPOBMJ MF BUUJWJUË F HMJ
FWFOUJPSHBOJ[[BUJEB4*10WJTJUBSFJMTJUP
XXXTJQPOB[JPOBMFJU
Fondazione AIOM
-B'POEB[JPOF"*0.OBTDFQFSFTTFSFBM
mBODP EFJ QB[JFOUJ JM TVP QSJNP PCJFUUJWP
JOGBUUJÒDPMMFHBSFJMNPOEPEFMMPODPMPHJB
DPO J NBMBUJ QFS DPOTFHOBSF MPSP OFM QJá
CSFWF UFNQP QPTTJCJMF J SJTVMUBUJ EFMMF QJá
NPEFSOF UFSBQJF F USBTGFSJSF MF DPOPTDFO
[F QJá BWBO[BUF BMMF QFSTPOF PHHJ DPMQJUF
EBUVNPSF-B'POEB[JPOFÒDPNQPTUBEB
PODPMPHJNBTJSJWPMHFJONBOJFSBEJSFUUBB
DJUUBEJOJFQB[JFOUJ-B'POEB[JPOF"*0.TJ
QPOFDPNFQVOUPEJSJGFSJNFOUPOB[JPOBMF
QFS MPQJOJPOF QVCCMJDB F QFS MF JTUJUV[JPOJ
OFMTFUUPSFEFMMPODPMPHJBOPOEBMQVOUPEJ
WJTUB EFMMB SJDFSDB QVSB EJ CBTF F QSFUUB
NFOUFDMJOJDBNBTVUVUUJJUFNJDIFQPSUBOP
VOCFOFmDJPJNNFEJBUPPJMQJáSBQJEBNFO
UFQPTTJCJMFBMMFQFSTPOFDPMQJUFFBUVUUJJ
DJUUBEJOJ JO UFSNJOJ EJ QSFWFO[JPOF QSJNB
SJB -B 'POEB[JPOF IB QSPEPUUP OVNFSP
TJNBUFSJBMJJOGPSNBUJWJVUJMJQFSJQB[JFOUJ
FEIBDPOUSJCVJUPBMMBSFEB[JPOFEJRVFTUB
HVJEB 1FS TBQFSOF EJ QJá WJTJUBSF JM TJUP
XXXGPOEB[JPOFBJPNJU
INSPIRE 37
Associazione Italiana di Oncologia
Medica (AIOM)
-"TTPDJB[JPOF*UBMJBOBEJ0ODPMPHJB.FEJ
DB"*0.
ÒMBQJáSBQQSFTFOUBUJWB4PDJFUË
4DJFOUJmDBEFMMPODPMPHJBJUBMJBOB-"*0.
TJQPOFDPNFPCJFUUJWPGPOEBNFOUBMFJMNJ
HMJPSBNFOUPEFMMBRVBMJUËEJWJUBEFJQB[JFO
UJ BUUSBWFSTP MJOUFHSB[JPOF EFMMF EJWFSTF
NPEBMJUË UFSBQFVUJDIF EFMMPODPMPHJB DMJOJ
DBDIJSVSHJBSBEJPUFSBQJBUFSBQJBNFEJDB
JODPMMBCPSB[JPOFDPOHMJBMUSJQSPGFTTJPOJTUJ
DIFBTTJTUPOPJMNBMBUPQTJDPMPHJJOGFSNJF
SJUFSBQJTUJQBMMJBUJWJTUJFDD
1FSNBHHJPSJ
JOGPSNB[JPOJWJTJUBSFJMTJUPXXXBJPNJU
Società Internazionale
di Psico-Oncologia (IPOS)
2VFTUB PSHBOJ[[B[JPOF EJ QSPGFTTJPOJTUJ TJ
PDDVQB EFJ CJTPHOJ FNP[JPOBMJ F JOUFSQFS
TPOBMJEFMMFQFSTPOFBNNBMBUFEJUVNPSFF
EFJMPSPGBNJMJBSJ/FMTJUPXFCQPUSFUFUSP
WBSFNPMUJDPMMFHBNFOUJVUJMJTVJHSVQQJEJ
TVQQPSUPQFSJQB[JFOUJFJOGPSNB[JPOJTVMMF
GPOUJEBDPOUBUUBSF2VFTUPPQVTDPMPÒTUBUP
TDSJUUPDPOMBJVUPEFJNFNCSJEFMMB*104
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38
FONTI INFORMATIVE
SITI INTERNET:
twww.fondazioneaiom.it
twww.siponazionale.it
thttp://www.ipos-society.org/QSPGFTTJPOBMTNFFUJOHTFE
DPSFDVSSJDVMVNDPSFDVSSJDVMVNQSFTIUN
thttp://www.aimac.itJOGPSNB[JPOJMJCSFUUJ
thttp://www.corriere.itTQPSUFMMPDBODSPQTJDPODPMPHJBJOEFYTIUNM
LIBRI:
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RIVISTE:
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thttp://www.aiom.it/JU0ODPMPHJBNFEJDB1VCCMJDB[JPOJ
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thttp://www.gruppocic.com/TDIFEB@SJWJTUBQIQ
*%JNBHFYJNBHFZJNBHF$FSDB
Il progetto Inspire è gentilmente
sostenuto da
tel. 030 226105
fax 030 2420472
[email protected]
We Innovate Healthcare
“Questa guida è stata realizzata su carta riciclata”
cod. 86007713
Inspire è un progetto internazionale
promosso da IPOS,
International Psycho - Oncology
Society
INSPIRE 1
Società Italiana di Psico-Oncologia
Affrontare il Tumore del Polmone:
Supporto ed Aiuto Emotivo per i Familiari
Per la versione italiana si ringraziano:
t Fondazione AIOM
t Società Italiana di Psico-Oncologia (SIPO)
Un ringraziamento
ra
speciale a:
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INDICE
Introduzione
t/POTJFUFTPMJ
t$PNFQVÛFTTFSFVUJMF
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t4FOUJNFOUJDPNVOJ
t$BNCJBNFOUJOFMMF
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Affrontare la Diagnosi
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Comprendere ed Affrontare
il Trattamento
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t5SBUUBNFOUPFEFNP[JPOJ t(FTUJSFJMEPMPSFFJTJOUPNJ Informazioni per Affrontare
la Malattia
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4
INTRODUZIONE
Non siete soli
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INSPIRE 5
Come può essere utile questa guida
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INSPIRE
1
ogia
co-Oncol
liana di Psi
Società Ita
lmone:
ore del Por i Familiari
m
u
T
il
re
Affronta iuto Emotivo pe
ed A
Supporto
6
Sentimenti comuni
t1BVSB t3BCCJB
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t4FOTPEJDPMQB
t"OTJB
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Sono reazioni normali!
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BNBUF
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JMHSVQQPEJTVQQPSUPTFRVFTUPQVÛBJVUBSWJ
INSPIRE 7
Cambiamenti nelle relazioni
*MUVNPSFNPEJmDBMFSFMB[JPOJJOUFSQFSTPOBMJ1PUSFTUFUSPWBSWJ
BEBWFSFVOOVPWPSVPMPBMMJOUFSOPEFMSBQQPSUPQPUSFTUFBWFSF
NBHHJPSJSFTQPOTBCJMJUËmOBO[JBSJFPEJHFTUJPOFEPNFTUJDB
OFMDBTPJODVJJMWPTUSPDPOJVHFPJMWPTUSPDPNQBHOPTJBOP
BNNBMBUJ
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BDDFUUBSFJMWPTUSPBJVUP5BMWPMUBRVFTUPÒVOQSPCMFNBF
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NBHHJPSFJOUJNJUË
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8
CBDJPVOBDBSF[[BPTFNQMJDFNFOUFVOTPSSJTPQPTTPOPTFNQSF
BJVUBSWJBEFTQSJNFSFBNPSFFTVQQPSUP1SFOEFSTJDVSBEFMMB
QFSTPOBDIFTJBNBQVÛFTTFSFVONPNFOUPEBWWFSPTQFDJBMF
EFOTPEJDBMPSFFJOUJNJUË
5PDDBSTJÒNPMUPJNQPSUBOUFTJBQFSWPJTJBQFSMBQFSTPOB
DIFBNBUF*OEJQFOEFOUFNFOUFEBMDBSBUUFSFDIJVTPPBQFSUP
MFQFSTPOFBQQSF[[BOPTFNQSFVOBCCSBDDJPFMBWJDJOBO[BEFJ
QSPQSJDBSJRVBOEPTJTFOUPOPHJáPTPOPTQBWFOUBUF
4 6 ( ( & 3 * . & / 5 0 1 & 3 1 " 3 - " 3 & QSPWBUFBEBTDPMUBSFMBQFSTPOBDBSBTFO[BHJVEJDBSFRVFMMPDIFTUB
EJDFOEP
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"WPJOPOÒSJDIJFTUPEJSJTPMWFSFJQSPCMFNJNBTFNQMJDFNFOUF
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INSPIRE 9
AFFRONTARE LA DIAGNOSI
Informazioni sul tumore del polmone
*MWPTUSPDBSPQPUSFCCF
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DPOPTDFSFJMQJáQPTTJCJMF
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*ORVFTUPMJCSFUUPUSPWFSFUFBMDVOFJOGPSNB[JPOJEJCBTFDIF
WJQPTTPOPTFSWJSFRVBOEPSJUFSSFUFDIFJMNPNFOUPTJBRVFMMP
HJVTUP
Tipi di tumore ai polmoni
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10
Chi può avere il tumore al polmone?
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INSPIRE 11
Sintomi
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t.BODBO[BEJBQQFUJUPFQFSEJUBEJQFTP
t4UBODIF[[B
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12
Parlare della malattia
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TFOTJCJMJTFO[BJOTJTUFSFUSPQQP
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EJWFSTPEBWPJ
"MDVOJTJTGPHBOPQJáGBDJMNFOUFNFOUSFTUBOOPGBDFOEPRVBMDPTB
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QPTTPOPFTTFSFQJáFGmDBDJEFMMFQBSPMF
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INSPIRE 13
BGGSPOUBSFNFHMJPRVFTUJBSHPNFOUJ1SFOEFSFOPUBEJRVFTUJ
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SFMB[JPOF6OBSJTBUBPVO
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DPNVOJDBSFTFO[BQBSPMF
4 6 ( ( & 3 * . & / 5 0 1 & 3 1 " 3 - " 3 & WBMVUBUFRVBOEPJMWPTUSPDBSPÒEFMMVNPSFHJVTUPQFSQBSMBSF
TFSJBNFOUF
2VBMDIFWPMUBTBSËUSPQQPTUBODPPTFNQMJDFNFOUFOPOTBSËJM
NPNFOUPHJVTUP
14
Misurare la “temperatura emotiva”
*MiUFSNPNFUSPEFM
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10 = massimo
disagio emotivo
Sì
No Problemi Pratici
Cura dei figli
Alloggio
Economici
Trasporto
Scolastici/lavorativi
Sì
No Problemi relazionali
Rapporto con i figli
Rapporto con il partner
Rapporto con gli altri
Sì
No Problemi Emozionali
Depressione
Sì
0 = nessun
disagio emotivo
Paure
Nervosismo
Tristezza
Preoccupazione
Perdita di interesse
nelle usuali attività
No Aspetti spirituali
INSPIRE 15
Sì
No Problemi Fisici
Problemi di sonno
"MUSPTQFDJmDBSF
Dolore
Problemi a lavarsi/vestirsi
Nausea
Senso di fatica e stanchezza
Problemi a muoversi
Problemi respiratori
Ulcere alla bocca
Problemi ad alimentarsi
Difficoltà a digerire
Stipsi
Disturbi della minzione
Febbre
Secchezza della cute/prurito
Naso chiuso/senso di secchezza
Formicolio alle mani o ai piedi
Senso di gonfiore
Problemi sessuali
Diarrea
Problemi di memoria/
concentrazione
Problemi su come ci si vede
e come si appare
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16
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QSPWBSFJMUFSNPNFUSP4JQPUSFCCFJODPSBHHJBSMPBNPTUSBSF
MFTVFSJTQPTUFBMNFEJDPPBHMJJOGFSNJFSJRVFTUPQPUSFCCF
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FNP[JPOJ
Segnali di disagio emotivo
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INSPIRE 17
"MDVOJQSPCMFNJDPNFMBQFSEJUBEFMMBQQFUJUPJM
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NBOJGFTUBQPTTPOPFTTFSFDBVTBUJEBMUVNPSFPEBMMFUFSBQJF
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TJOUPNJEJEFQSFTTJPOFP
BOTJB4FTJFUFQSFPDDVQBUJ
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"ODIFWPJQPUFUFDIJFEFSF
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TUBUPEJTUSFTTFNP[JPOBMF
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MBTJUVB[JPOF
18
Prendersi cura di chi si prende cura
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BODIFTVMMBWPTUSBTBMVUFmTJDBFQTJDPMPHJDBFTFOPOWJ
QSFOEFUFDVSBEJWPJTUFTTJQPUSFTUFBNNBMBSWJ
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DPOTJHMJBSWJQSPGFTTJPOJTUJPHSVQQJEJTVQQPSUPDIF
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GBNJMJBSFEJSJUUJEFMMBWPSBUPSF
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INSPIRE 19
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DIFQPTTPOPBJVUBSWJOFMMFGBDDFOEFEPNFTUJDIFPOFMMF
DPNNJTTJPOJ
4 6 ( ( & 3 * . & / 5 0 1 & 3 1 " 3 - " 3 & RVBOEPBTDPMUBUFMFQSFPDDVQB[JPOJEFMWPTUSPDBSPOPODFSDBUF
EJPGGSJSHMJJNNFEJBUBNFOUFVOBTPMV[JPOF-BTDJBUFHMJJMUFNQPEJ
USPWBSMBQFSQSJNP
20
COMPRENDERE E AFFRONTARE IL TRATTAMENTO
Informazioni
sulle terapie
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Trattamento
Come funziona
Chirurgia
Operazione per rimuovere una parte
o l’intero tumore
Radioterapia
RaggL;DGDOWDSRWHQ]DFKHKDnno
ORVFRSRGLULGXUUHODPDssa
del tumore o distruggHUQHOHFHOOXle.
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non tumorali
Chemioterapia
FarmDFLXWLOL]]DWLSHUGLVWruggere
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,OWUDWWDPHQWRSXzFDXVDUHHIIHtti
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HSHUGLWDGHLFDSHlli
FarmDFLELRlogiFi
o “target therapy”
Una nuova classe di farmaci che ha
l’obiettivo di individuare e uccidere
solo le cellule tumorali senza
danneggiare quelle sane.
La maggior parte degli effetti
collaterali sono controllabili
INSPIRE 21
Quando dovrebbe essere utilizzato
‡,QSD]LHQWLLQEXRQHFRQGL]LRQL di
salute
‡1HLSULPLVWDGLGHOWXmore
polmonare
‡3HUSD]LHQWLFKHQRQKDQQRVXEito
nessun tipo di operazione
‡2FFDVLRQDOPHQWHSUima o dopo la
FKLUXrgia
‡1HLGLYHUVLVWDGLGHOWXPore
‡3HUGLPLQXLUHO·LnWHQVLWjGLDOFuni
sintomi (es. dolore, espettorato
HPDWLFRFLRqWRVVLUHVangue)
‡&RPHWUDWWDPHQWRXQLFRSHUULGXrre
il tumore
‡0HQWUHVLHIIHWWXDODUDGLRWHUDSLDper
ridurre il tumore (a volte prima della
FKLUXrgia)
‡'RSRO·LQWHUYHQWRFKLUXrgLFRR la
radioterapia per distruggere le
FHOOXOHWXPRUDOLULmaste
‡&RPHWHUDSLDXQLFDSHUWHQHUHVRtto
FRQWUROORODPDODWtia
"MDVOJTVHHFSJNFOUJQFSBSSJWBSF
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NFEJDP
t 1SFOEFSFOPUBPSFHJTUSBSF
JMDPMMPRVJPQFSBJVUBSWJB
SJDPSEBSFNFHMJPJEFUUBHMJ
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QPSUBSFBDBTBFMFHHFSF
TVDDFTTJWBNFOUF
t $IJFEFSFOPNJFSFDBQJUJ
UFMFGPOJDJEFMMFQFSTPOFEB
DPOUBUUBSFQFSBWFSFBJVUP
TQFDJBMNFOUFBMEJGVPSJEFHMJ
PSBSJEVGmDJP
22
Domande da porre
1PUFUFPSHBOJ[[BSFJOBOUJDJQPMFEPNBOEFDIFWPSSFTUFGBSFF
BOOPUBSMF%JTFHVJUPBMDVOJTVHHFSJNFOUJ
t 2VBMÒMPTUBEJPEFMMBNBMBUUJB $IFDPTBTJHOJmDB
t *ODIFNPEPMBNBMBUUJBJOnVFO[FSËMBOPTUSBWJUBRVPUJEJBOB
t 2VBMJTPOPJUSBUUBNFOUJSBDDPNBOEBUJ 2VBMJTPOPHMJFGGFUUJ
DPMMBUFSBMJ
t 4FMBDIFNJPUFSBQJBOPOGVO[JPOBRVBMJBMUSFPQ[JPOJEJUSBUUBNFOUPDJ
TPOP
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t $IJTJQVÛDPOUBUUBSFTFDJTPOPQSPCMFNJ
t 7
JTPOPDPOTJEFSB[JPOJEJFUFUJDIFEBUFOFSFBNFOUFDJCJEBFWJUBSF
DPOTVNPEJBMDPMJDJBMJNFOUJQBSUJDPMBSJEBJODMVEFSFOFMMBEJFUB
t$PTBTJQVÛEJSFEFMMFWJUBNJOFPEFHMJJOUFHSBUPSJ
4 6 ( ( & 3 * . & / 5 0 1 & 3 1 " 3 - " 3 & TFOPODBQJUFRVFMMPDIFJMNFEJDPEJDFDPOUJOVBUFGBSFEPNBOEF
mODIÏOPOÒUVUUPDIJBSP$IJFEFUFHMJEJTQJFHBSWFMPJONPEPEJWFSTP
INSPIRE 23
Trattamento ed emozioni
1VÛFTTFSFNPMUPEJGmDJMFWFEFSFMBQFSTPOBDBSBNFOUSFBGGSPOUBHMJ
FGGFUUJDPMMBUFSBMJEFMUSBUUBNFOUPUBMWPMUBQFTBOUJ*OPMUSFMFUFSBQJF
BMUSJGBSNBDJPMBNBMBUUJBTUFTTBQPTTPOPDBVTBSFDPOGVTJPOFF
QSPCMFNJFNPUJWJ
1FSRVFTUFSBHJPOJÒCFOFQBSMBSFDPOJMNFEJDPEFMMFQSFPDDVQB[JPOJ
SFMBUJWFBMMFSFB[JPOJFNPUJWFDIFJMGBNJMJBSFQPUSFCCFNPTUSBSF
EVSBOUFJMUSBUUBNFOUP
3JDPSEBUFDIFOPOEPWFUFGBSFUVUUPEBTPMJ1PUSFTUFBODIFBJVUBSF
MBQFSTPOBDBSBSJDPSEBOEPMFRVBMJTPOPHMJPCJFUUJWJEFMUSBUUBNFOUP
*ODPSBHHJBUFMPBNBOHJBSFCFOFFBSJQPTBSF
1SPWBUFBEJTUSBSMPEBMMBNBMBUUJBQBSMBOEPEBMUSPPBJVUBOEPMPB
GBSFMFDPTFDIFQPTTPOPEBSHMJQJBDFSF
4 6 ( ( & 3 * . & / 5 0 1 & 3 * - # & / & 4 4 & 3 & RVBOEPÒQPTTJCJMFTFEFUFWJJOVOQBSDPPJOHJBSEJOPMBOBUVSB
BJVUFSËFOUSBNCJBEBMMFHHFSJSFJMWPTUSPTQJSJUP1PUFUFBODIF
JODPSBHHJBSFJMWPTUSPDBSPBPDDVQBSTJEFJTVPJBCJUVBMJIPCCZF
JOUFSFTTJPQQVSFBEJOJ[JBSOFEJOVPWJ
24
Gestire il dolore e i sintomi
µOPSNBMFFTTFSFTQBWFOUBUJEBMEPMPSFBTTPDJBUPBMMBNBMBUUJB
PBMMFUFSBQJF3JDPSEBUFDIFJMEPMPSFQVÛFTTFSFUFOVUPTPUUP
DPOUSPMMP$FSDBUFEJDBQJSFRVBMJTPOPJGBSNBDJDIFQPTTPOP
BJVUBSFJMWPTUSPDBSP$SFBUFVOBUBCFMMBDPOHMJPSBSJFVOBMJTUB
EFMMFNFEJDJOFDIFQPUSFCCF
BWFSCJTPHOPEJQSFOEFSF
*MNBMBUPQVÛDFSDBSFEJGBSF
JMDPSBHHJPTPFOBTDPOEFSFJM
EPMPSFÒJNQPSUBOUFDIJFEFSF
BJVUPBMNFEJDPPBHMJ
JOGFSNJFSJTFWJSFOEFUFDPOUP
DIFJMWPTUSPDBSPQSPWBEPMPSF
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4 6 ( ( & 3 * . & / 5 0 3 " 1 * % 0 DPOUSPMMBUFTFTVMWJTPPTVMDPSQPEFMWPTUSPDBSPDJTPOPTFHOBMJEJ
EPMPSF'SFRVFOUJUSFNPSJEFMNFOUPPDPOUSB[JPOJEFMMFNBTDFMMF
TDBUUJPCMPDDIJEFMMFHBNCFTPOPUVUUJTFHOJEJTPGGFSFO[B
INSPIRE 25
INFORMAZIONI PER AFFRONTARE LA MALATTIA
Problemi respiratori
-BQBVSBEJOPOSJVTDJSFBSFTQJSBSFÒNPMUPDPNVOFJODIJIBVO
UVNPSFBMQPMNPOF
"MDVOFQFSTPOFQPTTPOPUSBSSFCFOFmDJPEBMMVUJMJ[[PEJPTTJHFOP
FEJNFEJDJOBMJ
1VÛFTTFSFVUJMFJNQBSBSFBMDVOJFTFSDJ[JQFSNJHMJPSBSFMB
SFTQJSB[JPOF1PUSFUFUSPWBSMJOFMMJCSFUUP*/41*3&QFSJ
QB[JFOUJ
Effetti collaterali della terapia
1PUSFTUFFTTFSFQSFPDDVQBUJQFSHMJFGGFUUJDPMMBUFSBMJEFJUSBUUBNFOUJ
MBDIFNJPUFSBQJBBEFTFNQJPQVÛJOEVSSFMBOBVTFBµJNQPSUBOUF
EJTDVUFSFEJPHOJFGGFUUPDPMMBUFSBMFDIFJMWPTUSPGBNJMJBSFQSFTFOUB
*MNFEJDPQPUSËEBSWJGBSNBDJFDPOTJHMJQFSHFTUJSMP
4 6 ( ( & 3 * . & / 5 * 1 & 3 " ' ' 3 0 / 5 " 3 - * JODPSBHHJBUFJMGBNJMJBSFBEFWJUBSFPEPSJGPSUJFTQF[JFQFSSJEVSSFJM
TFOTPEJOBVTFB1VÛFTTFSHMJEJBJVUPNBOHJBSFFCFSFMFOUBNFOUFOPO
NFTDPMBSFDJCJDBMEJFGSFEEJFWJUBSFDJCJGSJUUJFHSBTTJFMBDBGGFJOB
26
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ÒNPMUPQFSTPOBMFFHMJ
FGGFUUJDPMMBUFSBMJQPTTPOP
NBOJGFTUBSTJDPONBHHJPSF
PNJOPSFJOUFOTJUË*O
BMDVOJDBTJQPUSFCCF
SFOEFSTJOFDFTTBSJP
MVUJMJ[[PEFMMBCPNCPMBEJ
PTTJHFOPµVUJMFDPOPTDFSF
JGBSNBDJDIFJMWPTUSP
DBSPTUBBTTVNFOEPQFS
QPUFSHMJFMJTPNNJOJTUSBSFUFNQFTUJWBNFOUFJOQSFTFO[BEJ
TJOUPNJ*MWPTUSPGBNJMJBSFBNNBMBUPQPUSËTFOUJSTJSBTTJDVSBUP
TFTBDIFTJFUFJOHSBEPEJHFTUJSFMBCPNCPMBEFMMPTTJHFOPFEJ
BJVUBSMPDPOJGBSNBDJ
4 6 ( ( & 3 * . & / 5 0 1 & 3 1 " 3 - " 3 & DIJFEFUFBMWPTUSPDBSPDPTBQSPWBBEFTTFSFTPUUPQPTUPBEVOB
UFSBQJBBOUJUVNPSBMF2VBMJTPOPMFTVFTQFSBO[FFMFTVFQBVSF
INSPIRE 27
Prendersi cura di sé
*ORVFTUPNPNFOUPDPTÖEFMJDBUPÒJNQPSUBOUFQSFOEFSTJDVSB
EFMMBQSPQSJBTBMVUFQTJDIJDB5BMWPMUBBODIFQJDDPMFDPTFQPTTPOP
QPSUBSFVOHSBOEFCFOFmDJP
t 5SPWBUFVONPNFOUPEJUSBORVJMMJUËQFSSJnFUUFSFFSJMBTTBSWJ
t 4UBUFJODPOUBUUPDPOMBGBNJHMJBFHMJBNJDJoBWFUFCJTPHOP
EFMMPSPTVQQPSUPFBNPSFQFSQSFOEFSWJDVSBEFMWPTUSPDBSP
t 1SFOEFUFWJVOHJPSOPMJCFSPQFSTUBSFMPOUBOPEBUVUUPDJÛDIFIB
BDIFGBSFDPOPTQFEBMJF
QSPCMFNJEJTBMVUF
t 'BUFWJBJVUBSFEBMMB
GBNJHMJBFEBHMJBNJDJQFS
BWFSFEFMUFNQPMJCFSP
QFSWPJTUFTTJ
t 6UJMJ[[BUFJQFSNFTTJEJ
MBWPSPPQQVSFDIJFEFUF
BHMJBNJDJEJBJVUBSWJF
GBSFDPNNJTTJPOJQFSWPJ
28
t 1SFOEFUFWJDVSBEJWPJ'BUFNBTTBHHJFTFSDJ[JPHVBSEBUFMP
TQPSUJO57oGBUFRVBMTJBTJDPTBWJGBDDJBQJBDFSF
t $FSDBUFEJNBOUFOFSFBMNFOPVOPEFJWPTUSJIPCCZ
t $IJFEFUFBJVUP
t $
IJBNBUFVOBMJOFBEJBJVUPUFMFGPOJDPPQBSUFDJQBUFBVO
HSVQQPEJTVQQPSUPTFEFTJEFSBUFQBSMBSFDPOQFSTPOFDIF
QPTTBOPDBQJSF
4FTJFUFQSFPDDVQBUJQFSJMWPTUSPCFOFTTFSFFNPUJWPOPO
FTJUBUFBDIJFEFSFBJVUPBEVOQSPGFTTJPOJTUBHMJPQFSBUPSJ
TBOJUBSJJOPTQFEBMFPJMNFEJDPEJGBNJHMJBQPTTPOPFTTFSFVO
CVPOJOJ[JP
Uno stile di vita sano
.FOUSFTUBUFBJVUBOEPJMWPTUSPDBSPBEBGGSPOUBSFMBNBMBUUJBÒ
JNQPSUBOUFDIFWJNBOUFOJBUFJOVOBCVPOBGPSNBmTJDBPMUSFDIF
QTJDPMPHJDB*OPMUSFTFWPJJOQSJNBQFSTPOBTFHVJUFVOPTUJMFEJ
WJUBTBOPQPUFUFJODPSBHHJBSFJMWPTUSPDBSPBGBSFMPTUFTTP&DDP
BMDVOJTVHHFSJNFOUJ
INSPIRE 29
t 'BUFVOBEJFUBTBOBDPOGSVUUBFWFSEVSB
GSFTDIFDFSFBMJJOUFHSBMJFQSPUFJOFDBSOF
QFTDFGSVUUBTFDDBFMBUUJDJOJ
t 1SFQBSBUFDPTFTFNQMJDJ/PODPNQMJDBUFWJ
MBWJUBDVDJOBOEPQJBUUJFMBCPSBUJTBMWP
DIFRVFTUPOPOWJBJVUJBSJMBTTBSWJ
t #FWFUFNPMUJMJRVJEJ
t 3JQPTBUFFEPSNJUFBTVGmDJFO[B
t 'BUFFTFSDJ[JPmTJDP
t 4FGVNBUFTBSFCCFJMDBTPEJTNFUUFSF
$IJVORVFUSBFCFOFmDJPEBMMPTNFUUFSFEJ
GVNBSF
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EJTBMVUFDPNFBTNBPEJBCFUFÒJNQPSUBOUF
DIFSJTQFUUJBUFJWPTUSJDPOUSPMMJNFEJDJFJ
USBUUBNFOUJ
30
Prendersi cura dei bambini
µNPMUPEFMJDBUP
BJVUBSFVOCBNCJOP
DIFIBVOHFOJUPSF
BNNBMBUPEJUVNPSFBM
QPMNPOF
*CBNCJOJQPTTPOP
TFOUJSTJBSSBCCJBUJ
TQFDJBMNFOUFTFJM
HFOJUPSFÒVOGVNBUPSF
1PTTPOPQSPWBSF
TFOUJNFOUJDPNQMFTTJF
BNCJWBMFOUJ
6MUFSJPSJSFTQPOTBCJMJUËQPTTPOPSJDBEFSFTVMMFWPTUSF
TQBMMFQFSDFSDBSFEJNBOUFOFSFMBSPVUJOFGBNJMJBSFJM
QJáOPSNBMFQPTTJCJMF$IJFEFUFBJVUPBHMJBNJDJFBMMB
GBNJHMJBTFRVFTUPQVÛBJVUBSWJ
INSPIRE 31
.BOUFOFSFMBOPSNBMFSPVUJOFÒNPMUPJNQPSUBOUFJ
WPTUSJmHMJOPOJNQPSUBEJRVBMFFUË
EFWPOPTFOUJSFDIF
QPTTPOPDPOUJOVBSFBQBSUFDJQBSFBMMFBUUJWJUËDPOJMPSP
DPFUBOFJFBQSBUJDBSFJMPSPIPCCZ
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SJEFSFFBEJWFSUJSTJ
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TBQFSF-PTUBGGNFEJDPQPUSËBJVUBSWJBQBSMBSFDPOMPSP
PSJTQPOEFSFBMMFMPSPEPNBOEFRVBOEPOFDFTTBSJP
4 6 ( ( & 3 * . & / 5 0 1 & 3 1 " 3 - " 3 & BTTJDVSBUFWJEJBWFSFVOBQFSTPOBDPODVJQBSMBSFOPOJM
WPTUSPDBSPBNNBMBUPEJUVNPSF
JONPEPEBQPUFSFTQSJNFSF
MJCFSBNFOUFJWPTUSJTFOUJNFOUJ
32
Come i professionisti possono essere di aiuto
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TVQQPSUP
L’équipe curante può aiutarvi a sentirvi meglio:
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INSPIRE 33
Lo staff può anche:
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tQTJDIJBUSJ
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34
Richiedere un aiuto psicologico
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QTJDPMPHJDBOPOFTJUBUFBQBSMBSOFDPOMPTUBGGDVSBOUFF
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DPODVJQBSMBSFFDIFEJBTVQQPSUPNFOUSFTJFTQSJNFDJÛDIFTJ
QFOTB
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EJQTJDPPODPMPHJB
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QPTTPOPFTTFSFJOEJWJEVBMJEJDPQQJBPGBNJMJBSJEJHSVQQP5SBJ
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4 6 ( ( & 3 * . & / 5 0 1 & 3 1 " 3 - " 3 & DPOEJWJEFSFJQSPQSJQFOTJFSJOFHBUJWJDPOVOPTQFDJBMJTUBQVÛMBTDJBSF
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INSPIRE 35
Come possono aiutare i gruppi di pazienti
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36
CONTATTI FONDAMENTALI
Società Italiana di Psico-Oncologia (SIPO)
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4*10
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MFOEP SFMB[JPOJ TDJFOUJmDIF F SBQQPSUJ EJ
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QSPHSBNNJ FEVDB[JPOBMJ MF BUUJWJUË F HMJ
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Fondazione AIOM
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DJUUBEJOJ JO UFSNJOJ EJ QSFWFO[JPOF QSJNB
SJB -B 'POEB[JPOF IB QSPEPUUP OVNFSP
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INSPIRE 37
Associazione Italiana di Oncologia
Medica (AIOM)
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DB"*0.
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NPEBMJUË UFSBQFVUJDIF EFMMPODPMPHJB DMJOJ
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SJUFSBQJTUJQBMMJBUJWJTUJFDD
1FSNBHHJPSJ
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Società Internazionale
di Psico-Oncologia (IPOS)
2VFTUB PSHBOJ[[B[JPOF EJ QSPGFTTJPOJTUJ TJ
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TDSJUUPDPOMBJVUPEFJNFNCSJEFMMB*104
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QBSUF EFJ QB[JFOUJ F EBJ MPSP GBNJMJBSJ TV
RVFTUBHVJEB-*104TWPMHFVOSVPMPJN
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HSVQQJ QSPGFTTJPOBMJ J SBQQSFTFOUBOUJ EFJ
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1FS VMUFSJPSJ JOGPSNB[JPOJ TVJ QSPHSBNNJ
FEVDB[JPOBMJ F MF QVCCMJDB[JPOJ WJTJUBSF JM
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Global Lung Cancer Coalition (GLCC)
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Il progetto Inspire è gentilmente
sostenuto da
tel. 030 226105
fax 030 2420472
[email protected]
We Innovate Healthcare
“Questa guida è stata realizzata su carta riciclata”
cod. 86007712
Inspire è un progetto internazionale
promosso da IPOS,
International Psycho - Oncology
Society