A.I.C. introducing
Napoli 16 settembre 2010
Prof. Cleto Corposanto
AIC - Italy
1
Our first thirty years
2
Thirty years in numbers
3
Rules
4
“5 per mille” contribution from tax
income declaration
2
1979
Which are the needs?
What is this disease about?
What can be eaten?
Where to find products?
2010
needs
•
•
•
•
•
•
•
The right “eating out”
“Demedicalication” of coeliac disease
“Get back” to family life
The “ready to eat” gluten-free meal
Gluten-free holiday
Gluten-free “Sociality”
Early diagnosis
TODAY
On what does the coeliac person can count
on?
• Free foodstuff allocation (from 1982)
• Safeguard rare / chronic disease
• Having granted the right to gluten-free meal in public
structures
• More than 2.000 products in RNA (Registro Nazionale
Alimenti: Food National Register)
• More than 10.000 products in the Food and Drinks
Directory, so called “Prontuario”
• More than 2.000 venues to eat and sleep out
• More effective labels, the trademark
• 19 local AIC societies
TODAY
AIC FEDERATION
National
Scientific
Committee
General Assembly
19 local Association
Chair
Board of Directors
“Celiachia Notizie” House
Organ
Editing
Scientific editing
Chief Operating Officer
Alimentazione Fuori Casa/ Eating out Project
Catering for those whose travel
Public Catering
Bed & Breakfast
Special Projects
Foodstuff
Product certification and Food and Drinks Directory
Food Technology Research
Food Education
External
Auditors’
Board
Staff
Treasurer
Management control
Aoecs representative
Food Manager
No Food
Food
Restaurants, Pizzeria and Ice-cream parlours
Ethic and
Disciplinary
Committee
Trademark
Fund Raising
Events’ management
Public Financing Projects
External Relations
International Relations
Companies’ relations
Education
Medical Scientific Education
Local Activites’ Development
SBS – Spiga Barrata Service limited company
AIC – FUNCTIONAL
RESPONSABILITY
FOOD MANAGER
AIC BOARD OF DIRECTORS
SBS CHAIR
SBS Board of Directors
CHIEF OPERATING OFFICER
DIET PROJECTS:
•Food and Drinks
Directory
•Trademark
•“Alimentazione
Fuori Casa” Eat Out
project
General Secretariat
Administration
OTHER PROJECTS:
•“Celiachia Notizie”
four-monthly review
•Publishing activities
•Convention
organization
AIC GENERAL
ASSEMBLY
Board of Directors
VICE- CHAIR
VICE- CHAIR
TREASURER AND SECRETARY
C.S.R.
RESEARCH
SCIENTIFIC
COMMITTEE
1
Our first thirty years
2
Thirty years in numbers
3
The Rules
4
“5 per mille” contribution from tax income declaration
10
Data updating
Members : 56.895 on Dec. 31° 2009, with an increase of 6%
increase to year 2008
60.000
50.000 38.310
43.137
48.690
53.642
56.895
40.000
30.000
20.000
10.000
0
2005
2006
members' quantity
2007
2008
2009
Data updating
Coeliac population in Italy: more than 100 thousand
people
- as per advanced information from the “Relazione
annuale al Parlamento sulla Celiachia – anno 2009”
(annual Coeliac Parliament Relation – 2009 edition),
to be shortly presented by Health Ministry-
Food and Drinks Directory, the
“Prontuario”
14000
12000
10000
2005-2006
2007
2008
2009
2010
8000
6000
4000
2000
0
2005- 2007
2006
2008
2009
2010
Food and Drink
Directory year
2005
2006
2007
2008
2009
2010
Quantity of
products
5829
6660
8612
10.211
12.320 *
* Plus 20% compared to 2009, with a 15% increase in terms of companies
Trade Mark Updating
Food and Drinks Directory
year
2005
2006
2007
2008
2009
2010
Quantity of products
343
434
720
744
1014
1200
1014
1000
720
800
600
744
434
343
400
200
19
29
41
100
100
0
Anno Anno Anno Anno Anno Anno Anno Anno Anno Anno
2000 2001 2002 2003 2004 2005- 2007 2008 2009 2010
2006
“Registro Nazionale degli Alimenti”* (Italian Foodstuff
National Register) Updating
2001: 281 products
2010: more than 2500 products and 143 companies
*Introduced by Veronesi’s Decree in 2001
3000
2500
Nr of
products
2000
1500
1000
500
0
2001
2010
WHERE TO GET GLUTEN-FREE FOODSTUFF
GLUTEN-FREE
PRODUCTS
SPECIALIZED SHOPS
AIC’s Projects
AFC Eating Out Project
2010:
more than 2000 venues
ALIMENTAZIONE FUORI CASA
THE “EATING OUT
PROJECT”
- Precise guidelines for:
• Provisioning
• Storage
• Production
• Food supply
- Educational and refresher courses
- monitoring system with recurrent visits
AFC’s Venues 2010
GENRE
TOTAL NUMBER
“AUTOGRILL” HIGHWAY SHOPS
22
B&B
110
BAR
36
SAILING BOATS
2
“FINI GRILL” HIGHWAY SHOPS
24
ICE-CREAM PARLOUS
324
“MY CHEF” RESTAURANTS’ CHAIN
22
RESTAURANTS / HOTELS
1.521
SUMMER CAMP
1
VENDING
10
TOTAL
2.072
Il sito www.celiachia.it
Visitors’ number www.celiachia.it
Each visitor is counted per session (in a month period)
237.681
250.000
206.283
200.000
150.000
100.000
50.000
0
73.350
21.000
gen-03
gen-07
gen-09
gen-10
Geografic origin (January 2009)
“In fuga dal glutine/“Running away
from gluten”’s Project
“In fuga dal glutine”/”Running away from
gluten”’ Project
OBJECTIVES
Inform and increase COMMUNITY
awareness on:
- what Coeliac disease is
- the problems referring to this disease
- the therapy = the requirement to
follow a strict diet
- peculiarities of the diet itself
Inform and Educate
“SENSITIVE” people on:
- coeliac disease
- gluten-free nourishment
To encourage
- amongst STUDENTS a strong relationship foundation
- within the SCHOOLS the safeguard of different needs,
striving in order to reduce and avoid any discomfort
arising from this diversity
Eurispes*: AIC is amongst
the 100 Italian excellences
On October 2° 2008, the third “Rapporto di
Eccellenza” (Excellence Report) was
presented: 100 successful episodes in
Italy
*Political, economical and social studies Institute
1
Our first thirty years
2
Thirty years in numbers
3
The Rules
4
“5 per mille” contribution from tax
income declaration
26
CURRENT STATUS ON REGULATIONS
1982:
1992:
2001:
2001:
2003:
2005:
2008:
Ministerial Decree dated July 1°, 1982
Introduction of Free Foodstuff Allocation
Decree 111, dated January 27°, 1992
Particular Nourishment
Decree 279, dated May 18°, 2001
Rare Diseases
Decree, dated July 5°, 2001, so called Veronesi
Free Allocation and Products Register
Community Directive n. 89, indication of allergens in labelling
Law 123, dated July 4°, 2005
Coeliac population’s prophylaxis regulation
Prime Minister Decree 23/04/08
“LEA” Minimum level of service in Health provision – Rare
and Chronic Disease’s listing
Law nr. 123/05 and the right for GF meal
Summary:
 Coeliac disease, social disease, art 1
 Confirmation of free foodstuff allocation, art 4
 Objectives: early diagnosis and prevention: medical professional trainings and refresher
courses, centers and network structures’ confirmation, diagnosis’ protocols, prevention of
complication and monitoring of linked diseases, test definition, art 3
 Gluten free meal in schools and hospitals’ restaurants as well as in public offices, art 4
 Coeliac disease information at professional training and refresher courses for
restaurateurs and hotelkeepers, art 5
 Parliament report on new scientific outcome referring to early diagnosis and complication
monitoring, art 6
“Legge bianca”,which is a law with no provision in case of clauses’ lack of
implementation, and its application:
 Medical professional training
 Professional training for catering operators
(report on art. 5)
 Complication
 Interpretation (art.4’s emendment)
28
Law nr. 123/05, art 4
Art. 4.
1. (…..)
2. (…..)
3. Gluten free shall be given out, upon anticipated
request by the interested people, in school and
hospital premises, as well as in public offices’
refectories.
4. The burden outcoming from the implementation
of paragraph 3 is evaluated in 3.150.000 euros per
year as of 2005.
Non official article translation
29
Law nr.123/05, art 5
Art. 5.
1. (…)
2. Regions and self-governing districts of Trento and
Bolzano to provide ad hoc coeliac disease information
pamphlets at professional trainings and refresher courses for
restaurateurs and hotelkeepers.
3. The burden outcoming from the implementation of
paragraph 2 is evaluated in 610.000 euros per year as of
2005.
Non official article translation
30
1
I nostri primi trent’anni
2
Trent’anni in cifre
3
Le norme
4
The first communication campaign
31
AIC
Coeliac disease
AIC SPOT COMPETING AT “GRANDPRIX DELLA
PUBBLICITA’” 2010 EDITION
Thanks!
For queries and information:
E-mail
xxxxxxxxxxxxxxxxxxxxxxxxxxx
xxxxxxxxxxxxstreet
Town
www.celiachia.it